The Prader-Willi Syndrome Association (UK) is a special association for people and families affected by the syndrome. Through its members, both affected families and the professionals who help them, it is probably in-touch with many of the cases of PWS in this country.
The Association was formed in 1981, when the syndrome was little known and not always diagnosed easily, and has long experience of providing help and information. The incidence of PWS is very low (estimated to be about one in fifteen thousand) so that, without the Association, few people involved with the syndrome – the person themselves, parents and siblings, GPs and other medical professionals, care staff and social workers, teachers and therapists, would have experience of more than one person with PWS. The purpose of the Association is to help eliminate that sense of isolation which they would otherwise experience.
33 Leopold Street
Tel: (01332) 365676
For Further information visit the website