The Interstitial Cystitis Support Group was set up in 1994 by two sisters who suffered from the disease. They felt that so little was known about the condition here in the UK, although through the IC Association in America they found there were many sufferers here, that they wished to do something about it.
The group has an ever-expanding membership which includes health professionals who wish to learn more about the disease and the current therapies and treatments which are being used to counteract its symptoms.
Since its launch, the group has produced quarterly newsletters to give members up-to-date information on treatments. In every issue there are also several pages dedicated to the experiences and thoughts of the members, as their own practical advice and approach to IC proves invaluable to newly diagnosed sufferers.
A video has been produced about IC and the effect it can have on a person’s life. It features several of our members recounting their own experiences, and giving practical tips on everyday living. It has been produced to give practical help the newly diagnosed sufferer, and to help their family understand how IC can affect someone close to them. The video is narrated by Dr Chris Steele, the resident doctor on ITV’s’ ‘This Morning’. A second video has also been produced to provide information to health practitioners on the differences between IC and bacterial cystitis. It is 8 minutes long and narrated by Clive Mantle (Mike Barratt of Holby City and Casualty)
The group has received funding from the National Lottery Charities Board to fund a full time member of staff for three years from 1997. The group however relies heavily on its voluntary local co-ordinators, and is dependent upon its members and their donations to continue its work.
[boxibt style=”success”]Contact Information
76 High Street
Telephone/Fax: 01908 569169
For Further information and help visit the website