The Haemophilia Society is a national charity that exists to work for the best possible care for people with haemophilia and related bleeding disorders.
Among the services it provides for its members are:
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- General information about haemophilia and related bleeding disorders.
- Information about social security benefits.
- Information, advice and support on hepatitis C and HIV.
- Information for parents of newly-diagnosed children.
- Volunteer support networks.
- Hardship grants.
- Aventis Alert pager service to enable parents to be contacted if their children have a bleed.
- Caravan holidays in the UK.
- Adventure holidays and weekends for children.
- Fundraising support.
- Assistance with media enquiries.
- Information on treatments.
- Travel advice and travel insurance advice.
- Haemophilia information days and Family information days.
- One-off meetings on specific issues, such as hepatitis C.
- Hepatitis C support network.
- C Issues newsletter.
- Support contacts for people with mild and moderate haemophilia.
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The Society also has a network of local groups across the UK. These are based in:
England
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- Bristol & Southwest
- Cambridgeshire and District
- Cornwall
- Hampshire
- Hull
- Kent
- Leicestershire & Rutland
- Lincoln & District
- Norfolk & Norwich
- Northampton
- Northern
- North West
- Nottingham
- Oxford
- Southern
- South Essex
- Yorkshire
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Wales
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- North Wales
- South Wales
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Scotland
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- Perth Grampian
- Tayside
- West of Scotland
- South East Scotland
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Northern Ireland
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- Northern Ireland Group
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Special Interest (for people with HIV and haemophilia)
Birchgrove Group
For information telephone the free helpline on 0800 018 6068 Monday to Friday 9am to 5pm (helpline sponsored by Worldcom)
[boxibt style=”success”]The Uk Haemophilia Society
Third Floor
Chesterfield House
385 Euston Road
London
NW1 3AU
For admin enquiries:
Tel: 020 7380 0600
Fax: 020 7387 8220
Email: info@haemophilia.org.uk
For Further information visit the website
www.haemophilia.org.uk[/boxibt]