Williams Syndrome is a non-hereditary condition which occurs at random in approximately 1 in 25,000 live births. It is a congenital syndrome due to an error on chromosome 7 (at the elastin gene focus). There is a typical facial appearance and variable learning difficulties. There may be problems of calcium metabolism within the first two years of life and other problems may occur in the heart, kidneys, eyes, teeth and with hearing.

The Foundation was established in 1980 and is run by parents of WS individuals. It maintains a register of all known WS cases, acts as an information and advisory service, produces regular newsletters and magazines, organises national meetings and supports medical research. Regional Co-ordinators around the country keep in touch with local families, visit new members, arrange local meetings and organise fund raising events.

The Foundation pays for group holiday weeks for unaccompanied adults and also families (self-catering) every year.

Williams Syndrome Foundation Ltd
Registered Office:
161 HIGH STREET
TONBRIDGE
KENT
TN9 1BX

TEL: 01732 365152
FAX: 01732 360178
REGISTERED CHARITY NO: 281014

CONTACT NAME: John Nelson
Email: john.nelson-wsfoundation@btinternet.com

For Further information visit the website
www.williams-syndrome.org.uk

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