DEBRA is the support group charity of the EB community. DEBRA UK, the first and largest of 29 national DEBRA organisations round the world, directly funds a comprehensive specialist nursing service and medical and scientific research programmes.

DEBRA’s purpose is to:

  • Fund international research into the provision of effective diagnosis and treatments of EB.
  • Provide specialist nursing and paramedical staff to support families and professionals.
  • Enable individuals and families affected by EB to help themselves and each other.
  • Publish an extensive range of information materials for the medical professions and the general public.
  • Provide specialist equipment or financial support in cases of special need.
  • Organise, where appropriate, holidays for EB sufferers and their families.
  • Encourage the development of UK regional EB support groups.

DEBRA can be contacted at:

DEBRA House
Wellington Business Park
Dukes Ride
CROWTHORNE
RG45 6LS

Tel: 01344 771961
Fax: 01344 762661
Email: debra.uk@btinternet.com

Or you can link to DEBRA at:
Website: www.debra.org.uk

Registered Charity No. 284754

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