DEBRA is the support group charity of the EB community. DEBRA UK, the first and largest of 29 national DEBRA organisations round the world, directly funds a comprehensive specialist nursing service and medical and scientific research programmes.
DEBRA’s purpose is to:
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- Fund international research into the provision of effective diagnosis and treatments of EB.
- Provide specialist nursing and paramedical staff to support families and professionals.
- Enable individuals and families affected by EB to help themselves and each other.
- Publish an extensive range of information materials for the medical professions and the general public.
- Provide specialist equipment or financial support in cases of special need.
- Organise, where appropriate, holidays for EB sufferers and their families.
- Encourage the development of UK regional EB support groups.
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[boxibt style=”success”]DEBRA can be contacted at:
DEBRA House
Wellington Business Park
Dukes Ride
CROWTHORNE
RG45 6LS
Tel: 01344 771961
Fax: 01344 762661
Email: debra.uk@btinternet.com
Or you can link to DEBRA at:
Website: www.debra.org.uk
Registered Charity No. 284754[/boxibt]
